Multiple Sclerosis For Dummies
Lýsing:
Your trusted, compassionate guide to living with MS Being diagnosed with multiple sclerosis (MS) doesn't mean your life is over. Everyone's MS is different and no one can predict exactly what yours will be like. The fact is, lots of people live their lives with MS without making a full-time job of it. Multiple Sclerosis For Dummies gives you accessible, easy-to-understand information about what happens with MS—what kinds of symptoms it can cause, how it can affect your life at home and at work, what you can do to feel and function better, and how you can protect yourself and your family against the long-term unpredictability of the disease.
You'll learn how to make treatment and lifestyle choices that work for you, what qualities to look for in a neurologist and the rest of your healthcare team, how to manage fatigue, the pros and cons of alternative medicine, why and how to talk to your kids about MS, stress management strategies, your rights under the Americans with Disabilities act, and so much more. Covers major medical breakthroughs that slow the progression of the disease and improve quality of life for those living with MS Helps those affected by MS and their family members understand the disease and the latest treatment options Helpful and trusted advice on coping with physical, mental, emotional, and financial aspects of MS Complete with listings of valuable resources such as other books, websites, and community agencies and organizations that you can tap for information or assistance, Multiple Sclerosis For Dummies gives you everything you need to make educated choices and comfortable decisions about living with MS.
Annað
- Höfundar: Rosalind Kalb, Barbara Giesser, Kathleen Costello
- Útgáfa:2
- Útgáfudagur: 2012-04-02
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- Format:Page Fidelity
- ISBN 13: 9781118227145
- Print ISBN: 9781118175873
- ISBN 10: 111822714X
Efnisyfirlit
- Title Page
- Copyright Page
- Table of Contents
- Foreword
- Introduction
- About This Book
- Conventions Used in This Book
- What You’re Not to Read
- Foolish Assumptions
- How This Book Is Organized
- Part I: When MS Becomes Part of Your Life
- Part II: Taking Charge of Your MS
- Part III: Staying Healthy and Feeling Well
- Part IV: Managing Lifestyle Issues
- Part V: Creating Your Safety Nets
- Part VI: The Part of Tens
- Icons Used in This Book
- Where to Go from Here
- Part I: When MS Becomes Part of Your Life
- Chapter 1: Meeting MS Face to Face
- Introducing the Roles Your Immune and Nervous Systems Play in MS
- The immune system: Your body’s frontline defender
- The nervous system: Your body’s CEO
- What happens in MS
- Taking advantage of the body’s natural healing process
- Exploring Possible MS Triggers
- Gender clues
- Ethnic or racial clues
- Geographical clues
- Genetic clues
- Lifestyle clues
- Understanding Why Your MS Is as Unique as Your Fingerprint
- Distinguishing the four disease courses
- Scanning the possible symptoms
- Reviewing the MS Treatment Menu
- Recognizing How Your MS Affects Your Loved Ones
- Talking about the tough stuff
- Keeping daily life on track
- Maintaining healthy partnerships
- Becoming confi dent parents
- Minimizing the Impact of MS on Work and Play
- Protecting Your Quality of Life
- Introducing the Roles Your Immune and Nervous Systems Play in MS
- Chapter 2: So, Doc, What Do I Have? Getting a Diagnosis
- Clarifying the Diagnostic Criteria
- Getting Familiar with the Neurologist’s Diagnostic Tools
- Medical history
- Neurologic exam
- Various medical tests
- Identifying a clinically isolated syndrome
- Understanding Why the Road to Diagnosis Can Have Detours
- Chapter 3: You Have MS — So Now What?
- First Things First: Sorting Out Your Feelings
- Shock: “What just hit me?”
- Denial: “This isn’t happening”
- Confusion: “Why me?”
- Anxiety: “What’s going to happen to me?”
- Anger: “This just isn’t fair!”
- Relief: “Finally! Now I know what’s up!”
- Deciding on the Next Steps
- Catch your breath before making any major changes or decisions
- Have a heart-to-heart conversation with your neurologist about treatment
- Begin talking about MS with the people in your life
- Make a commitment to your health
- Facing the Longer-Term Challenges of a Chronic Illness
- The how-to of healthy grieving
- Living with unpredictability
- Making Treatment and Lifestyle Choices That Work for You
- Minimizing the stress of decision-making
- Getting the professional help you need
- Reaching out for emotional support
- First Things First: Sorting Out Your Feelings
- Chapter 1: Meeting MS Face to Face
- Chapter 4: Getting the Right Players on Your Healthcare Team
- Working with Your Physician
- Finding a neurologist with the qualities you value
- Establishing a pattern of routine care
- Making the most of your doctor visits
- Knowing when to call in the MS specialist
- Getting a second opinion
- Rounding Up Other Key Players
- The nurse for education, guidance, and support
- The rehabilitation specialists to help you keep on truckin’
- The mental health specialists to help you keep your head on straight
- Other important specialists
- Considering Comprehensive MS Treatment Centers
- Working with Your Physician
- Chapter 5: Developing a Plan to Take Charge of Your MS
- Using Multiple Strategies to Manage MS
- Modifying the disease course
- Managing acute relapses
- Taking charge of your symptoms
- Enhancing function through rehabilitation
- Engaging psychosocial support
- Taking care of your health
- Tapping Your Creativity and Flexibility
- Creating Your Own Treatment Template
- Using Multiple Strategies to Manage MS
- Chapter 6: Managing the Disease Course and Treating Relapses
- Managing the Disease Course
- Understanding the whys and wherefores of early treatment
- Getting to know the first-line options
- Turning to the Plan B options
- Setting realistic expectations for the DMTs
- Carefully considering benefits and risks
- A word about progressive forms of MS
- Managing Relapses
- Defining a relapse
- Treating an acute relapse
- Feeling Confident about Your Treatment Decisions
- Managing the Disease Course
- Chapter 7: Managing Fatigue, Walking Problems, Visual Changes, and Tremor
- Foiling Your Fatigue
- Identifying and dealing with the causes of fatigue
- Managing your energy bank to help put your sleepiness to bed
- Envisioning Solutions to Vision Problems
- Managing visual symptoms
- Exploring longer-term management strategies
- Getting Around Walking Problems
- Addressing the sources of the problem
- Using medication to improve walking
- Using aids to take charge of your mobility
- Taming Tremor
- Foiling Your Fatigue
- Chapter 8: Handling Problems with Bladder and Bowel Function, Pain, Speech and Swallowing, and Sex
- Eliminating Elimination Problems
- Managing your bothersome bladder
- Dealing with your bowel symptoms
- Sidestepping Sensory Symptoms and Pain
- Sorting Out Speech and Swallowing Problems
- Speech and voice problems: Articulating the facts
- Watching out for swallowing problems
- Sizing Up Sexual Symptoms
- Identifying the changes you may be experiencing
- Silence isn’t golden: Talking is the fi rst step
- Treating your sexual symptoms
- Eliminating Elimination Problems
- Managing the Emotional Ups and Downs
- Dealing with depression
- Controlling moodiness and irritability
- Getting a handle on uncontrollable laughing or crying
- Handling Problems with Thinking and Memory
- Defining cognition
- Understanding how MS can affect your cognition
- Deciding when an evaluation is in order
- Knowing what to expect during an evaluation
- Identifying treatment options
- Employing practical strategies for managing daily cognitive challenges
- Defining CAM
- Understanding the Allure
- Putting CAM to the Test
- Understanding the role of the FDA
- Sorting out the wheat from the chaff
- Identifying CAM Interventions That May Be Useful in Managing Symptoms
- Herbs, vitamins, and other CAM options that go into the body
- Exercise, prayer, and other CAM options done independently or in a class
- Acupuncture, massage, and other CAM options performed by a practitioner
- Looking at Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Understanding the CCSVI firestorm
- Ongoing efforts to clarify the relationship between CCSVI and MS
- Recommendations from the MS experts
- Becoming a Cautious CAM Consumer
- Chapter 11: Paying Attention to Your Health — It’s Not All about MS
- Enhancing Your Wellness by Paying Attention to the Whole You
- Scheduling Routine Checkups to Protect Your Health
- Making Healthy Eating a Priority
- Taking MS into account when planning your menu
- Battling the barriers to healthy eating
- Improving Your MS and Overall Wellness with Exercise
- Overcoming the hurdles
- Exercising your options
- Maximizing your comfort and safety during exercise
- Increasing Your Chances of Success
- Chapter 12: Handling Stress without Giving Up Your Life
- Understanding the Relationship between Stress and MS
- Recognizing Your Own Signs of Stress
- Feeling the physical signs of stress
- Feeling the emotional signs of stress
- Identifying Your Major Stresses
- Dealing with stress on the job
- Handling family stress with composure
- Managing your MS stress
- Creating Your Stress Management Plan
- Figuring out your priorities
- Setting realistic goals
- Cutting yourself some slack
- Taking some practical steps
- Tapping available resources
- Zoning in on your “MS-free zone”
- Practicing stress management techniques
- Scouting Out the Treatment Scene
- Understanding your treatment options
- Exploring ways to feel and function at your best
- Taking steps to prevent unnecessary complications
- Maintaining Your Quality of Life
- Holding on to what’s important to you
- Staying connected with other people
- Establishing goals and enjoying the satisfaction of meeting them
- Keeping your self-image well-polished
- Finding your “MS-free zone”
- Helping yourself by helping someone else
- Discovering Long-Term Care Services (Just in Case)
- Defi ning long-term care
- Getting help in your home
- Looking into adult day care
- Identifying assisted-living options
- Considering nursing home care
- Important Tips for Care Partners
- Chapter 14: Presenting Your MS Face to the World
- Explaining Your MS to Others
- Providing the basics
- Dealing with common reactions
- Remembering that MS is part of you but not all of you
- Disclosing Your Diagnosis to a Prospective Partner
- Communicating Your Needs
- Giving clear messages
- Staking out your independence
- P.S. Doctors can’t read your mind either
- Explaining Your MS to Others
- Addressing Your Family Members’ Feelings about Your Diagnosis
- Communicating Effectively with Adult Family Members
- Recognizing communication barriers
- Getting the ball rolling toward more open communication
- Keeping the Family Rhythm Going so Your MS Doesn’t Steal the Show
- Coping with the direct and indirect costs
- Managing energy and time
- Establishing family priorities
- Problem-solving: Many heads are better than one
- Building and Maintaining Healthy Partner Relationships
- Making time for each other
- Keeping the intimacy alive
- Maintaining a balanced partnership
- What to do when one partner can’t participate in joint activities
- Turning a caregiving relationship into a care partnership
- When Your Child Has MS
- Helping your adult child with MS
- Young children and teens get MS too
- MS and Babies: Here’s the Good News!
- Fertility isn’t affected by MS
- Pregnancy hormones reduce disease activity
- Pregnancies don’t increase a woman’s long-term disability level
- Childbirth isn’t a piece of cake for anyone but women with MS do just fine
- Parents with MS have healthy babies
- Breastfeeding is definitely an option
- Considering Key Issues when Making Family-Planning Decisions
- Minding your medications
- Remembering that babies don’t stay babies very long
- Facing the uncertainties: The future doesn’t come with guarantees
- Strategies for Smart Decision-Making
- Consult your MS doctor
- Evaluate your financial situation
- Take a good look at your teamwork
- Check out your support network
- Have a heart-to-heart with your partner
- Talk to other parents living with MS
- Remember that your plans can change
- Keeping the Communication Lines Open
- Telling the kids about your MS makes good sense
- Finding ways to broach the big issues
- Explaining those pesky symptoms
- Parenting around Your MS Symptoms
- “I’m so tired; I'm in bed before they are!”
- “How can I be a good dad if I can’t even play ball?”
- “How can I discipline — if I can’t catch ’em?”
- Employing Effective Parenting Strategies
- Call a spade a spade: Let MS take the blame when it needs to
- Come up with a creative backup plan
- Call on your support network
- Remember, MS isn’t always to blame — other people’s teenagers are a pain too
- Handle little issues before they get bigger
- Allow kids to be kids
- Chapter 18: Keeping Your Place in the Workforce
- Understanding the High Rate of Unemployment in MS
- Counting the Reasons to Keep on Truckin’
- Speed Bumps Ahead: Recognizing the Job-Related Challenges
- When symptoms get in the way
- When attitudes get in the way
- Knowing Your Rights under the ADA
- Disclosing your MS in the workplace
- Understanding the terms used in the law
- Requesting reasonable accommodations
- Calling in the EEOC
- Thinking about Leaving Your Job
- Exhausting your short-term leave options
- Looking into long-term disability options
- Making the choices that are right for you
- Considering Your Health Insurance Options — It’s All about Eligibility
- Employment-based insurance programs
- Public health insurance programs
- Insurance plans for the self-employed
- Options if you don’t have health insurance
- Holding on to Your Health Insurance
- Continuing coverage with COBRA
- Protecting your coverage with HIPAA
- Seeing COBRA and HIPAA work as a team
- Understanding the Ins and Outs of Your Health Insurance Plan
- Filing Successful Insurance Appeals
- Step 1: Check your coverage
- Step 2: Confirm why coverage was denied or was less than expected
- Step 3: File an appeal
- Replacing Your Income with Disability Insurance
- Commercial disability insurance
- Public disability insurance: SSDI
- A Brief Word about Life and Long-Term Care Insurance
- Preparing for the Worst While Hoping for the Best
- Facing those scary “what-ifs?”
- Taking charge of your future
- Navigating the Planning Process: It’s as Easy as One, Two, Three
- Where are you now?
- What might the future bring?
- What can you do now to be ready?
- Chapter 21: Ten MS Myths Debunked
- MS Is Fatal
- Everyone Eventually Needs a Wheelchair
- Because There’s No Cure, There’s Nothing You Can Do about Your MS
- People with MS Can’t Handle Stress
- People with MS Shouldn’t Have Children
- Having a Relapse Means Your Medication Isn’t Working
- “Natural” Treatments Are Safer
- No One Can Understand How You Feel
- Scientists Aren’t Making Any Progress
- If You Can’t Walk, Your Life Is Over
- Chapter 22: Ten Questions about Exciting Leads in MS Research . .
- Can Vitamin D Help Prevent MS?
- How Many Genes Play a Role in MS?
- What Medications Are on the Horizon?
- Could Worms Become an MS Treatment?
- Can Exercise Improve Your Memory?
- Can the Nervous System be Repaired?
- Could Brain Tissue Loss Alter Mood?
- What Might MS in Children Tell Researchers about the Cause(s) of MS?
- Can a Brain Damaged by MS Rewire Itself to Compensate for the Loss?
- What Does the Future Hold?
- Chapter 23: Ten Tips for Trouble-Free Travel
- Tap the Right Resources
- Calm Your Medical Concerns
- Save Energy for the Fun Stuff
- Check Ahead for Accessibility
- Rent Accessible Vehicles
- Keep Your Cool
- Navigate Air Travel with Confi dence
- Safely Pack Your Prescriptions
- Get Vaccinated
- Look for Adventure
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- Gerð : 208
- Höfundur : 10845
- Útgáfuár : 2012
- Leyfi : 379