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Community-Based Participatory Research for Health

Vörumerki: John Wiley
Vörunúmer: 9781118147870
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Community-Based Participatory Research for Health

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Efnisyfirlit

  • Front Matter
    • The Editors
    • Dedication
    • The Contributors
    • Acknowledgments
  • Part 1 Introduction to Community-Based Participatory Research
    • Introduction to Community-Based Participatory Research
      • References
    • Chapter 1 Introduction to Community-Based Participatory Research: New Issues and Emphases
      • The Growing Support for CBPR
      • Semantics and Core Principles
      • CBPR and the Fight to Eliminate Health Disparities
      • Goals of This Book: Continuing Concerns and New Emphases
      • Organization of This Book
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 2 The Theoretical, Historical, and Practice Roots of CBPR
      • Historical Roots
      • Core Concepts and New Theories
        • Participation
        • Theories and Use of Knowledge
        • Power Relations
      • Feminism, Poststructuralism, and Postcolonialism
      • Paulo Freire and Praxis
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 3 Critical Issues in Developing and Following CBPR Principles
      • CBPR Definition and Key Principles
        • 1. CBPR recognizes community as a unit of identity
        • 2. CBPR builds on strengths and resources within the community
        • 3. CBPR facilitates collaborative, equitable partnership in all research phases and involves an empowering and power-sharing process that attends to social inequalities
        • 4. CBPR promotes co-learning and capacity building among all partners
        • 5. CBPR integrates and achieves a balance between research and action for the mutual benefit of all partners
        • 6. CBPR emphasizes public health problems of local relevance and also ecological perspectives that recognize and attend to the multiple determinants of health and disease
        • 7. CBPR involves systems development through a cyclical and iterative process
        • 8. CBPR disseminates findings and knowledge gained to all partners and involves all partners in the dissemination process
        • 9. CBPR requires a long-term process and commitment to sustainability
      • Issues in Developing and Following CBPR Principles
        • No One Set of CBPR Principles Is Applicable to All Partnerships
        • Each CBPR Partnership Must Define Its “Community”
        • All Partners Must Decide What It Means to Have a “Collaborative, Equitable Partnership” and How to Make That Happen
        • Not Everyone Will Be Involved in the Same Way in All Activities
        • Establish Procedures for Dissemination
        • Recognize and Value Priorities Identified by the Community
        • Work with the Cultural Diversity of the Partners Involved
        • Develop Procedures to Ensure CBPR Principles Are Followed
        • Partnership Size Must Be Decided by and Appropriate for the Community
        • Recognize That CBPR Principles Alone Do Not Dictate Research Design and Methodology
        • Continually Evaluate How Well CBPR Principles Are Followed
      • Summary
      • Questions for Discussion
      • Key Terms
      • Notes
      • References
    • Chapter 4 Bringing Experimental Design to Community-Partnered Participatory Research
      • Using CPPR as a Framework
      • The Fit Between Designs and Projects
      • Experimental Design Lessons from the Building Wellness Pilot
        • Figure 4.1 Witness for Wellness Logo
        • Lesson 1: Establish a Framework and Expectations
        • Lesson 2: Time and Resources Are Investments
        • Lesson 3: A Planning Phase Can Be a Productive Project
      • Applying the Lessons: CPIC
        • Figure 4.2 Conceptual Framework for Community Partners in Care
      • The Road Ahead for CPIC
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
  • Part 2 Power, Trust, and Dialogue: Working with Diverse Communities in CBPR
    • Power, Trust, and Dialogue: Working with Diverse Communities in CBPR
      • References
    • Chapter 5 The Dance of Race and Privilege in CBPR
      • Framework of Oppression and Racism
        • Three-Tiered Racism Framework
        • Repressive and Productive Power
        • Hidden and Public Transcripts
      • Translating Culture
      • White Privilege
      • Building Alliances Across Differences
      • Recommendations for Research and Practice
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 6 Are Academics Irrelevant?: Approaches and Roles for Scholars in CBPR
      • Options for the Academic
        • The Initiator
        • The Consultant
        • The Collaborator
      • Recommendations for the Academic
        • Roles in Social Change
        • Guideposts for the Academic
          • What Is This CBPR Project Trying to Do?
          • What Are Your Skills?
          • How Much Research Participation Does the Community Need and Want?
            • Exhibit 6.1 An Organizer's Recommendations for Academics
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 7 CBPR with Cambodian Girls in Long Beach, California: A Case Study
      • ACRJ and the HOPE Projects
      • Setting the Stage for Participatory Research
        • Providing Support for the Process
        • Training for Participation in CBPR
          • Figure 7.1 The Power Flower
      • Identifying Sexual Harassment as an Issue
      • Researching the Problem
      • Moving into Action
      • Khmer Girls in Action: A Youth-Led Organization Is Born
      • Lessons Learned
      • Summary
      • Questions for Discussion
      • References
    • Chapter 8 CBPR with a Hidden Population: The Transgender Community Health Project a Decade Later
      • The Transgender Community and the CBPR Study
        • CBPR Is Participatory and Cooperative
        • CBPR Is a Co-Learning Process
        • CBPR Involves System Development
        • CBPR Is an Empowering Process
        • CBPR Balances Research and Action
      • Project Impact over Ten Years
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
  • Part 3 Selecting Issues and Evaluating Outcomes with Communities
    • Selecting Issues and Evaluating Outcomes with Communities
      • References
    • Chapter 9 Community-Driven Asset Identification and Issue Selection
      • Core Principles and Considerations
      • Tools for Identifying Community Resources and Issues
        • Walking and Windshield Tours
        • Interviews with Formal and Informal Leaders and “Regular Folks”
        • Modified Delphi Process
        • Community Capacity Inventories
        • Community Asset Maps
        • Risk Mapping
        • Community Dialogues or Guided Discussions
        • Voting with Your Feet
        • Developing Community Indicators
        • Visioning Processes
        • Creative Arts
      • Issue Selection in CBPR
      • When Preexisting Goals Constrain Issue Selection
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 10 Using Web-Based Tools to Build Capacity for CBPR: Two Case Studies of American Indian Leadership Development
      • Introduction to Case Studies
      • Case 1: Healthy Native Communities Fellowship
        • Figure 10.1 Medicine Wheel, which honors the four directions of Native traditions
      • Case 2: Just Move It
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 11 Using Photovoice for Participatory Assessment and Issue Selection: Lessons From a Family, Maternal, and Child Health Department
      • Background and Conceptual Framework
      • Community Assessment
      • A Photovoice Case Study from a County Health Department
        • Participant Recruitment
        • Workshop Design and Implementation
        • Learning from Pictures
        • Project Outcomes
      • Reflecting on Value Added
      • Recommendations and Implications
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 12 Issues in Participatory Evaluation
      • What Is Evaluation?
      • What Is Participatory Evaluation?
        • Table 12.1 Differences Between Conventional Evaluation and Participatory Evaluation
      • Use of PE in Community Health
      • PE Issues in Community Health Promotion
        • Exhibit 12.1 Steps in Participatory Evaluation
        • Table 12.2 Advantages and Disadvantages of External and Internal Evaluators
      • Youth Link Case Study
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
  • Part 4 Methodological and Ethical Considerations in Planning and Conducting CBPR
    • Methodological and Ethical Considerations in Planning and Conducting CBPR
      • References
    • Chapter 13 Issues and Choice Points for Improving the Quality of Action Research
      • Figure 13.1 Characteristics of Action Research
      • Broadening the Bandwidth of Validity
      • Toward a Participatory Worldview
        • Figure 13.2 Dimensions of a Participatory Worldview
        • On the Nature of the Given Cosmos
        • On Practical Being and Acting
        • On the Nature of Knowing
        • On Relational Ecological Form
        • On Purpose and Meaning: Spirit and Beauty
      • Choice Points for Action Research
        • Quality as Relational Praxis
        • Quality as a Reflexive or Practical Outcome
        • Quality as Plurality of Knowing
          • Quality Through Conceptual and Theoretical Integrity
          • Quality Through Extending Our Ways of Knowing
          • Quality Through Methodological Appropriateness
        • Quality as Engaging in Significant Work
      • Emergent Inquiry Toward Enduring Consequence
      • Summary
        • Issues as Choice Points and Questions in Action Research
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 14 Impacts of CBPR on Academic Researchers, Research Quality and Methodology, and Power Relations
      • Methods
        • Table 14.1 DICPP CBPR Partnerships Focused on Environmental Justice
      • Impacts of CBPR on Methodology and Processes
        • Research Question Selection
        • Instrument and Research Design
        • Ethical Review and Informed Consent
        • Data Collection
        • Data Analysis and Interpretation
        • Dissemination and Use of Findings
      • Impacts on Research Quality
      • Impacts on Power Relations
      • Discussion
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 15 Methodological and Ethical Considerations in Community-Driven Environmental Justice Research: Two Case Studies from Rural North Carolina
      • Eastern North Carolina Snapshot
      • Case 1: Industrialized Hog Production
        • Demographic Analysis of Disproportionate Exposure
        • The Quantification of Health Effects
        • Health Survey Design and Administration
        • State Reaction to Survey Results
      • Case 2: Discrimination in Disaster Relief
        • Hurricane Floyd and Intensified Community Challenges
        • Unearthing State Landfill Data
        • Combining Strengths to Document Discrimination and Need
        • Survey Design and Administration
        • Preliminary Survey Results
        • Dissemination of Survey Report
        • Progress and Continued Problems
      • Summary
      • Questions for Discussion
      • References
    • Chapter 16 Analyzing and Interpreting Data with Communities
      • Case 1: Survey Data from the East Side Village Health Worker Partnership
        • Participatory Data Analysis and Interpretation of Findings
        • Benefits and Outcomes
      • Case 2: Focus Group Data from a Latino Men's Soccer League
        • Participatory Data Analysis and Interpretation of Findings
        • Benefits and Outcomes
      • Case 3: Mapping Data in the Watchperson Project and El Puente
        • Participatory Data Analysis and Interpretation of Findings
          • Figure 16.1 Toxic Avengers' Skulls Map
        • Benefits and Outcomes
      • Lessons Learned
      • Summary
        • Exhibit 16.1 Lessons Learned from Working with Communities to Analyze and Interpret Findings
        • Table 16.1 Summary of Case Examples
      • Questions for Discussion
      • Key Terms
      • Note
      • References
  • Part 5 Using CBPR to Promote Social Change and Healthy Public Policy
    • Using CBPR to Promote Social Change and Healthy Public Policy
      • References
    • Chapter 17 The Role of CBPR in Policy Advocacy
      • The Policymaking Process
        • Figure 17.1 Model of the Public Policymaking Process in the United States: Policy Modification Phase
      • Defining and Framing a Policy Goal
      • Selecting a Policy Approach
        • Voluntary Agreements
        • Legal Actions
        • Studies and Moratoriums
        • Electoral Strategies
      • Identifying a Target
      • Support, Power, and Opposition
      • Policy Process Stages and CBPR Opportunities
        • Assessing the Policy Environment
        • Reframing the Issue and Defining the Initiative
        • Strategic Power Analysis
        • Organizing Support for the Initiative
        • In the Belly of the Beast
        • Victory and Defense
        • Enforcement and Evaluation
        • From Local to Global and Back
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 18 Using CBPR to Promote Environmental Justice Policy: A Case Study from Harlem, New York
      • Case Background
      • Research Methods, Roles, and Findings
        • From Research to Policy Action
          • Identifying and Defining the Problem
          • Setting an Agenda and Creating Awareness
          • Constructing the Policy Alternatives
          • Deciding on the Policy to Pursue
          • Engaging in Policy Advocacy
        • Policy Implementation and Outcomes
        • Broader Outcomes and Policy Considerations
      • Discussion
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 19 Participatory Action Research with Hotel Room Cleaners in San Francisco and Las Vegas: From Collaborative Study to the Bargaining Table
      • Theoretical Framework
      • Research Partners' Roles and Concerns
      • Defining Topics and Enhancing Participation
      • Designing and Pilot-Testing the Survey
      • Selecting the Sample Populations
      • Planning Outreach and Logistics
      • Analyzing the Data
      • Study Findings
        • Table 19.1 Key Findings from Hotel Room Cleaner Studies, by City
      • Translating Findings into Action
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
    • Chapter 20 Addressing Food Security Through Policy Promoting Store Conversions: The Role of a CBPR Partnership
      • Food Insecurity
      • The CBPR Partnership
      • LEJ Partnership's Policy Steps
        • Problem Identification and Definition
          • Figure 20.1 Products Sold in Eleven Corner Stores in Bayview Hunters Point in June 2002
        • Setting the Agenda
        • Constructing Policy Alternatives
        • Deciding on a Policy to Pursue
        • Implementing the Policy
          • Table 20.1 Good Neighbor Program Incentives for Corner Store Merchants
      • Local Policy-Related Outcomes
      • Summary
      • Questions for Discussion
      • Key Terms
      • References
  • Part 6 Next Steps and Strategies for the Future of CBPR
    • Next Steps and Strategies for the Future of CBPR
    • Chapter 21 What Predicts Outcomes in CBPR?
      • Study Background
      • Literature Search
        • Table 21.1 Literature Review Databases and Inclusion Criteria
      • Assessing Dimensions of Participation and Partnership
        • Internet Survey
          • Internet Survey Questions About Contexts
          • Internet Survey Questions About Participation Issues Within Group Dynamics:
        • National Advisory Committee Consensus Process
      • Final Model and Relationships Between Dimensions
        • Contexts
          • Figure 21.1 Conceptual Logic Model of Community-Based Participatory Research: Processes to Outcomes
        • Group Dynamics
        • Intervention
        • Outcomes
        • Relationships Among the Categories
          • Context and Group Dynamics
          • Within Group Dynamics
          • Context, Group Dynamics, and Outcomes
          • Group Dynamics, Intervention Research, and Outcomes
      • Measurement Issues
      • Summary and Implications for Future Research
      • Questions for Discussion
      • Notes
      • References
  • Back Matter
    • Appendix A A Protocol for Community-Based Research
      • References
    • Appendix B Federal Funding and Support for Participatory Research in Public Health and Health Care
      • Recent Efforts of Federal Health Agencies
        • Early Efforts
        • CDC-Based Efforts
        • NIH-Based Efforts
        • AHRQ-Based Efforts
        • Other Recent Federal Initiatives
      • Federal Quandaries in Furthering Participatory Research
      • References
    • Appendix C Reliability-Tested Guidelines for Assessing Participatory Research Projects
      • Key Differences Between the Old and New Guidelines
      • Guidelines for Assessing PR Projects
        • Key Terms
        • Instructions for Use
        • Guidelines
      • Considerations in Using the Guidelines
      • References
    • Appendix D Supporting Participatory Evaluation Using the Community Tool Box Online Documentation System
      • Background and Framework for the Online Support System
        • Figure D.1 Framework for Collaborative Public Health Action in Communities
      • Core Questions and Related Measures
        • Figure D.2 Cumulative Community and System Changes (Such as New Programs or Policies) Facilitated by a Hypothetical Coalition, and Associated Critical Events and Processes
        • Figure D.3 Possible Association of the Unfolding of Community and System Changes and Improvement in Population-Level Outcomes.
      • Summary and Advantages
      • References
    • Appendix E Making the Best Case for Community-Engaged Scholarship in Promotion and Tenure Review
      • Documenting and Assessing CES
      • Characteristics of Quality CES
        • Possible evidence includes:
        • Possible evidence includes:
        • Possible evidence includes:
        • Possible evidence includes:
        • Possible evidence includes:
        • Possible evidence includes:
        • Possible evidence includes:
        • Possible evidence includes:
      • Ideas for Documenting Quality CES in a Dossier
      • References
    • Appendix F Community Partnership Through a Nursing Lens
      • References
    • Appendix G Ethical Review of Community-Based Participatory Research
      • Table G.1 Alternate Ways of Addressing the Issues Covered by Current Protocol Forms
      • References
    • Appendix H Research Policies, Processes, and Protocol: The Navajo Nation Human Research Review Board
      • History and Development of the Review Board
      • Research Protocol Application Process
      • NN Standards of Approval
      • Review and Approval Stages
        • Table H.1 Twelve-Phase Navajo Nation Human Research Review Board Review and Approval Processes
      • References
    • Appendix I Undoing Racism Training as a Foundation for Team Building in CBPR
      • What Is Undoing Racism Training?
      • The Need for Antiracism Training in CBPR
      • Inside an Undoing Racism Workshop
      • Our Experience
      • References
    • Appendix J Risk Mapping as a Tool for CBPR and Organizing
      • Why Make Risk Maps?
        • Draw on Community Knowledge and Insight
        • Help People Become Active Investigators
        • Incorporate Experiential Learning and Involve Study Subjects
        • Be Effective in a Variety of Settings
      • Lessons for CBPR Researchers and Organizers
      • How to Make a Risk Map
      • References
    • Appendix K Using CBPR to Promote Policy Change: Exercises and Online Resources
      • Figure K.1 Power Mapping
      • Selected Online Tools for Working to Effect Policy Change
    • Appendix L Selected Centers and Other Resources for Participatory Research in North America
      • National and International Centers and Networks Headquartered in the United States and Canada
      • U.S. Local and Regional Centers
      • Canadian Local and Regional Centers
    • Name Index
    • Subject Index

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Vörumerki: John Wiley
Vörunúmer: 9781118147870
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